So You Tested Positive for HIV – NOW WHAT???
Actress and model Melyssa Ford will be serving up a four-part series on the state and importance of black sexual health, delving into the topics AIDS/HIV. Be informed, be safe and protect your worth.
Several days before I was scheduled to make an appearance and publicly speak on behalf of my non-profit organizations’ partner, the Centers for Disease Control and Prevention, I had a very vivid dream. I dreamt that I tested positive for HIV, and I immediately thought about taking my own life. I believed that my life, as I knew it, was over and not worth living anymore. Having been diagnosed with the virus, which would ultimately lead to the disease that would cause my death, coupled with ostracism from my friends and community, why go on?
The thoughts racing through my head were traveling at the speed of light. Where did I contract the virus? From whom did I contract it? WHEN? I began to think of the conversation I was going to have to have with former partners, not knowing when the virus was contracted and considering it can lay dormant for a significant period of time. Jesus, strike me down now!
And then a voice inside my head said to me, “Now you know just how full of crap you are and have been.” And I knew what it meant. I’d been preaching the word, the gospel, about HIV/AIDS Awareness, Prevention and Education for years. Sitting up on panels, encouraging folks to always know their status and to act responsibly and sitting up on my high horse knowing I had been afforded certain luxuries that allowed me to live a very responsible life. I didn’t have to sell my body in order to make money for baby formula. I didn’t live in poverty, and I didn’t live in an area with a statistically high rate of prevalence, increasing the chance of crossing paths with an infected sexual partner. And so, it seems, I could preach with a subtle sort of arrogance and apparently ignorance.
“So,” this voice said to me, “Let’s see just how full of it you are. Are you going to become a REAL advocate like Magic Johnson, Maria Davis and Marvelyn Brown, or are you going be a coward and go out like a sucker and end your life?” It’s at that point that I woke up. And I’d be lying if I said I didn’t wake up with an overwhelming sense of relief. It was just a dream, and my test results still said negative, but I was unsettled. I realized that if some young person followed my advice and got tested and tested positive, I would have no answers for them as to where to seek help and medical assistance. In that way, I was no real advocate, and I was STILL full of crap. So, I began to seek answers to the questions that needed asking--that no one ever wants to ask but so many of us should and will have to--if the statistics don’t change in the African American community.
Where can I get tested for HIV? And do the tests hurt?
The test involves a painless swab of the inside of your mouth. You have the choice of going for a confidential test at your doctor’s office or at a nearby clinic. Local health clinics usually advertise that they do free testing so it’s as easy as walking in and requesting it. If you wanted to get tested anonymously, you can get tested free of charge at a testing site offered by your states’ Health Department. You do not give a name; your test is processed by a number. If your test comes back positive, you can request professional counseling so you are made aware of all of your options in regards to health care and help with partner notification. Or you can look up free testing sites on HIVTest.org if your state health department doesn’t provide testing at their offices.
How often do I need to be tested for HIV?
Anytime you have shared needles during drug use or had unprotected sex, you should be getting tested for HIV. If you’ve had one or more STDs (Sexually Transmitted Virus) in the past, that increases your chances of contracting HIV through unprotected sex and drug use with needles. Keeping your sexual partners to a minimum and practicing safe sex is your best chance at staying healthy, where a once a year test is all that is needed.
Does testing negative for HIV mean I’m negative for all other STDs?
No it does not, and while on your next doctor’s visit, in addition to requesting your HIV test, request a test for all STDs. Our doctor’s are testing for certain things, like abnormal and possibly cancerous cells, during our PAPs and physicals. We need to verbally REQUEST all other testing for things such as Syphilis, Gonorrhea and HPV Human Papilloma Virus).
If I only give and receive oral sex, am I still at risk of contracting and passing along the HIV virus?
The risk exists but is extremely hard to determine. It’s advised to partake in this type of sexual activity only with partners you have a trusting and perhaps monogamous relationship with.
I tested Positive for HIV; what do I do now?
If you test positive for the HIV virus, prompt medical attention and consultation is an absolute necessity. Early medical treatment and a healthy lifestyle can delay the onset of AIDS, which is the disease. To determine when is the best time to start HIV medications your doctor will take 2 tests: one is a viral load test which determines how much HIV is in your blood stream; the other is a T-cell test, also known as a CD4 count, which determines how strong your immune system is. There are cases of people living with the HIV virus for up to 10 years without a single symptom, but that isn’t for you to determine on your own.
Your doctor will want to test you for Tuberculosis and other STD’s as they can cause serious health problems for you.
I have no health insurance and I have limited finances; how do I pay for treatment?
There are programs that assist those that fall below a certain income levels. The AIDS Drug Assistance Program (ADAP) offers federal assistance, but a number of different local groups in each city also offer assistance. Www.Health.gov is a website that can help you locate local groups that offer assistance in your city.
HIV/AIDS is a serious but chronic manageable disease. People who get treatment tend to live relatively normal lives, generally longer than the 1/3 of Americans with serious cardiovascular disease or diabetes. It is far more treatable than most cancers, specifically breast and cervical cancer, which kills at a significantly higher rate than HIV. However it is quite serious and has a real impact on those who live with it, and will eventually kill most people who are infected and get no doctor's attention or treatment. But most people in this country live many decades after becoming infected. According to Robert Bailey from the Centers for Disease Control and Prevention: “Person’s infected with HIV who begin treatment early are 96% less likely to transmit the virus to their sexual partners, and more likely to live very long lives because early treatment lowers the amount of HIV in the body. What’s unfortunate is that, of the 1.2 million American’s living with HIV, only 28% are receiving regular care, taking the necessary medicine and have viral suppression, and that needs to change.”
We need to stop thinking and talking about HIV/AIDS as if it is still 1981, and start to develop the same kind of supportive environment for those who are HIV positive as we do for victims of cancer or heart disease. A lot has changed in terms of medical advancement for HIV care over the last 30 years – however, the level of public ignorance about it remains quite stagnant and the disproportionate contraction rates in our community in comparison to other nationalities only supports this fact; as the saying goes “What hurts just one hurts us all”.
To get the facts about HIV/AIDS visit www.actagainstaids.org.